His Kindness

I got the most unexpected call today. But it meant so much. I was having the worst day. As I'm sure so many of you, could imagine. The last few weeks have been so difficult. Unexpected. And have left me feeling so numb.

In all reality, I haven't processed the last few weeks. I haven't cried much. Haven't begun to grieve. I just feel like I'm in shock. Walking around not feeling. Just going through the motions. This is grief. It's real. It's powerful. It's hard. And heartbreaking.

My Mom's services were just over a week ago. I should have grieved then. Cried. Really felt all the feels. Been present in the day. And what was happening. But I was trying to be brave. Be solid for my family. Since my aunt was diagnosed with lung cancer, days after my Mom's death. She had a biopsy on the day of my Mom's rosary. My already emotional family...is teetering on the edge.

And then there was the financial stress of everything. I seemed head under, from day one. Doing it all on my own. Wishing I had the support of others. That people could see, I needed help. I literally was trying to pay the funeral off, up until hours before. I now owe some relatives. But at least my Mom is at rest. This all after I was attacked by our loved ones, because a friend setup a GoFundMe to help. And I closed it down, almost immediately. I'll struggle silently. Because I can't handle all of that drama. 

This week, has just been slow moving. I'm not sure, what's really been going on. The days bleed into each other. I seem to be struggling to keep going. I've reached out to my PCP, for Grief Support or counseling. And it fell on death ears. 

I'm struggling. So bad. My family doesn't seem to recognize or see what I'm going through. In fact, I haven't heard from any of them. I shouldn't be surprised. Because let's face it. They really weren't around when my Mom needed them. Why would they be here for me?

So I was digging in the yard. Trying to keep up with my Mom's flowers. And deciding what  the dogs and I would eat for dinner. Today was so difficult emotionally. I just sat down, in my Mom's favorite part of the yard. And cried. Just let all the emotions sweep over me.

Then my phone rang. Can we say surprised? It was after 5:30PM. On a Friday evening. And I saw the oh too familiar phone number, of the Cancer Center. Who could it be? Is there an emergency? Why would they be calling?

I answered with a very confused, "Hello?" Tears still silently sliding down my face. To hear my Mom's doctor. His calm and steady voice. The voice I'd come to find so much comfort in. Like a sign of safety. He went on to give me his condolences. A lot like the staff at the hospital, he was shocked to hear about my Mom's death. I know. I'm still in shock. But to hear the medical staff say it...I know I'm not alone. No one saw this coming...

We talked for a bit. I tried to hold the tears in. To stay calm. To keep a steady pace about our conversation. But I just couldn't. For the first time since my Mom's death, I just let it all out. Poor Dr. N. He wasn't expecting all of that. The tears that had started out silently. Came in a waterfall effect. The ugly crying started. I couldn't breathe.

And he was just trying to tell me how sorry he was. To ask me...if there was anything he could do. Not expecting my reaction. Or that I'd really ask for help. I couldn't form words. Much less sentences. My brain turned to moosh. I just couldn't find the words. Finally I asked him, if he could help me find some counseling or therapy. I know...I NEED it.

He promised me, he'd talk to the therapist on staff. Told me, he was there if I needed anything. But honestly, I feel stupid. Like why did I finally lose it? And on him. Like crying so hard, I couldn't breathe. I was literally laying on the floor. Trying to catch my breath, telling him I was OK, and asking for help. All at the same time.

Maybe it's because he walked this journey with us. I mean, when someone sees the same things you are seeing. It bonds you. Even if you don't realize it at the time. Maybe it's because he's always been so truthful with us. That I felt this comfortable. I haven't even fallen apart like this...with family. Not even when I've been alone, have I allowed myself to feel the raw emotions.

I needed this call more than I knew. More than he probably knew. I can now see, how important these conversations are. Post caregiving, I have a completely different outlook on patient care. If I return to the medical field, I'll carry this with me. I'll remember how this call, changed things for me. And how I want to be that for someone else. 

Maybe it was his kindness. The simple fact, that he took 10 minutes out of his busy schedule, to ask how I was doing. Something that no one else has done. What does that say about my circle? How little, people really care about MY well being.

I can feel the bottom starting to shake. I know that I need therapy. A lot sooner than I expected. It's all crashing down around me. I'm starting to grieve my Dad. Who past away over 7 years ago. It's like for the first time in my entire life, I get to put my needs ahead of everyone else. And that's so scary. 

10 minutes. A simple call, from a man that was a complete stranger...2 years ago. But I feel like he understands my needs, better than anyone else in my life currently. We got off the call. And I just laid on the cold tile...crying. For almost 2 hours. It was like he opened the flood gates. And everything just came tumbling out.

From the bottom of my heart, I hope that's not how this chapter ends. I'm sure I made zero sense. Sounded like a buffoon. He was probably thinking, I should be committed. For my safety and the safety of those around me. Because my brain seemed to be short circuiting. I couldn't get the words out right. Nothing seemed to be working right. 

I have so much respect for Dr. N. For everything he did for my Mom. For his care over the last 22 months. The respect he showed my Mom. How he always referred to me by name. Knew who I was. Because in almost every other practice...the staff didn't remember my name. They didn't include my Mom in conversations about her health or care. 

This was the first person, besides nephrology, that saw us as people. Real people. Not just another chart to get through. How crazy, that you can establish a closeness...with people that you don't see often. Yes, in 22 months...we probably made it to an office appointment...during 20 months. There were a few telemedicine appointments in between. But was that enough time, for someone to really get to know you? 

I can't tell you what Dr. N's favorite food is. What he does outside of work. What his family looks like. The same way, he doesn't know much about my personal life. He always asked about my work. But he didn't know what my real career was prior to being a caregiver. How I was also a performer. That I can unload a truck of hay...in stiletto heals and pencil skirt. No, we don't know the details of each other's lives.    

But he recognized that I'm struggling. He anticipated that the grief would come and hit like a HUGE wave. And leave me drowning. He anticipated that better than my family. And he reached out. Something no one else has done.

For a few moments, he created a safe space for me. To grieve. And to cry. To feel the emotions that I've had bottled up, deep inside my soul. For that, I'll always be grateful. I hope that Dr. N, doesn't think I'm crazy. I'm just at my lowest point. Trying to keep my head above water. Long enough to breathe. And keep me going. Until I can find my footing again. I'm forever grateful for his kindness. And if nothing else, I hope he knows that. I am grateful to this man, that took such amazing care of my Mom. 💜

The Day My World Changed Forever

Tuesday came out of nowhere. Things had been relatively quiet Monday night. It's the first night I'd slept...since Friday? Our night nurse was an angel. I remember hearing her and my Mom around 3AM. My Mom was walking back to bed. Everything seemed pretty normal. As normal as you can get in the hospital.

We were up around 6AM. Prepping for my Mom's bone marrow biopsy. I'd been trying to talk her out of it. I didn't feel like it was necessary. Not at this point. Maybe we could wait. Until she was stronger. Or felt better. But she was still able to make her own decisions. So we had to let her. 

By 9AM she was having a lot of pain. I had been asking for hours, to speak with the oncologist on duty. I just felt like I needed a second opinion. Was my Mom dying? Was there something I could do? Was she just sick? And needed some help?

I managed to take a shower. And while I was in the shower, PT came around. My Mom was so exhausted! It took everything out of her to sit up. Then stand up. Take a few steps. And lay back down. The pain was unreal as well.

Everything started happening so quickly after that. PT was recommending her to go to an Impatient Rehab facility. PT and the Hospitalist were thinking Thursday would be a good day to transfer her. Because it had been a holiday weekend, we hadn't seen many of the people we should have. All the referrals were suddenly happening at once. Her Hospitalist came to see her. And noticed how different she was too.

Then the Bone Marrow Biopsy Team came in like a rush of bulls. Started prepping everything. No one had time to talk to me. I just didn't feel right about this. And my Mom's pain was getting worse. She hadn't really eaten in days. It was taking everything in her, to eat the small amounts she was managing. And that was only because I was feeding her. 

I know the drill when it comes to BMBs. I've been there for every single one she's had. As time has gone on, they've gotten more and more difficult to do. Mostly because my Mom's bones were getting so brittle. So it takes a bit longer than normal. She was in pain. We didn't have the normal doctor that she was used to.

Eventually, the doctor asked me to help. He was on the opposite side of the bed. His nurse was behind him. And someone that they were training was at the foot of the bed. He was a big guy. But completely overwhelmed by what was happening. He honestly looked like he might pass out at any moment. So I tried to comfort my Mom. I talked to her. Held her as still as I could. And watched...

The doctor was having such a difficult time getting a sample. He asked me a bunch of questions. I told him as much as I could. Eventually, after 90 minutes? He got what he thought was a good enough sample. Then the bleeding wouldn't stop. And they started calling the Oncology and ICU teams...

It was a lot to deal with. My Mom was crying in agony. Her abdomen was hurting her. We were having to keep pressure on the insertion point. I even had to help with that. While the team met outside the room to talk. And try to find some sort of bandage to assist with the bleeding. On top of all of this...we had to keep her as still as possible.

I don't know how long it took. I think the BMB Team was with us for about 3 hours. Eventually, the bleeding slowed. My Mom was given a gigantic amount of pain meds. That weren't helping. The fear in her eyes. Gosh, I can't get that imagine out of my mind. It's so hard to deal with. And to hear her cries. 

Eventually that team left. I asked the nurse again...if I could speak with someone from Oncology. I was sincerely considering...calling Dr. N. In his office. I was starting to get desperate. We hadn't seen anyone from Oncology. And my Mom had been at the hospital 6 days. I just needed to know...if it was time to just make her comfortable.

About this time, Dr. W came to see us. I think he could tell I was so stressed out. On the brink of a breakdown. The tears were only being held back, by pure prayers. Dr. W listened to me. And I to him. We looked at my Mom's chart. And her medical wishes. And determined that it was time for Hospice. He was sure, she wouldn't make it home. But figured we could get her to the Hospice Unit at the hospital. And that my Mom might have a couple of days. 

He hugged me. And for the first time, I cried. The stress of the weekend, finally broke me. To be honest, I had wished that we had been there a week earlier. Because Dr. N had been working in the hospital. Maybe I would have had a clearer mind. Just knowing I could have asked him anything. He was familiar with my Mom. Someone that I would have felt comfortable, having these tough discussions with. I also sincerely missed being in the Oncology Unit. Where I felt safe. Because the staff makes you feel safe.

As Dr. W left to go write the orders. So we could be moved in a couple of hours...I walked back into the room. Still shocked. So this was it? My Mom was dying. I didn't know how to deal with all of that news. My sister called. We'd been playing phone tag. The nurse came to check the bandage. Which needed to be changed for the 3rd time in about an hour. Obviously, the bleeding was still an issue...

I walked into the bathroom to talk to my sister. All of a sudden, I heard all this noise. And basically hung up on her. I walked out to the nurse in a bit of a panic. Trying to get my Mom's pulse. She had monitors on her ears, toes, and both hands. She called the Charge Nurse. They basically had my Mom upside down at this point. And everyone was trying to keep their cool. But I knew. I knew what was happening. I just felt it in the pit of my stomach...

I stepped out of the room. To let the staff work. To try and calm myself. I knew what was happening. But I didn't know how to process it. I walked to the area where the two towers meet. Sat down and looked outside. My cousin had text to see how things were going. I just wrote back. "It's so bad. Please let your mom know to come ASAP." I walked back into our unit. It's all just steps from my Mom's room, to this bench I was sitting on. And on the unit I sat on the little bench at the end of the hallway. Watching people running in and out of her room. Seeing all the chaos. And not knowing what to do. 

I was alone in that moment. And I knew I was about to be alone in this world. I knew that I was losing my Mom. Way too early in her life. She had so much life to live. And there was absolutely nothing I could do to help her. 

At this point, I see her Hospitalist running into her room. The doors fly open. The crash cart is being wheeled to her room. There is a nurse plugging it in. And I ran as fast as I could. The paddles were coming out. And I physically put myself between them and my Mom. I pleaded with the team to stop. To just stop. They were no longer doing my Mom any good.

Shaking. And with tears streaming down my face...I begged them to stop. I explained to the doctor, that Dr. W and I had decided to put my Mom on Hospice. And that he was putting the orders in. The Team looked at me...with pitty and horror. But they stopped. They tried to make my Mom comfortable. And tried to make the room as normal as they could.

Dr. U talked to me. That Hospice was no longer an option. That maybe the BMB was too much. But they'd provide Comfort Care. And he'd remain at the hospital, as long as my Mom was alive. I knew we didn't have much time. I knew it. Not just because of what I witnessed from my Mom. But because of the look in his eyes. The tone in his voice. And honestly...what doctor tells you they'll stay until the end. If the end is not near?

My Mom's nurse and doctor came in with meds. To make her comfortable. I asked if my Aunts and Uncles could come in. Would we be restricted to visitors? They assured me, we'd be OK. And they went to get the priest for us. By the time my Aunts and Uncle got there, the priest was there too. We'd just seen him.

I think he was as shocked as I was. He spoke with us. Tried to help us find some peace, as my Mom transitioned. Gave us suggestions of things to hold onto. We prayed. And after he left, I put on some religious music for my Mom. Sat by her bed. Held her hand. And prayed. 

I didn't want to be selfish. I wanted my Mom to be comforted at this time. I needed to be strong. To be with her. As scary as it was. As ill prepared as I was. As suddenly as it all happened. I wanted my Mom to be comfortable. And surrounded by peace and love.

We'd talked off and on. About her final wishes. She wanted everything done, to live. Except being put on machines for an extended period of time. She didn't want to suffer the same way my Dad did. She wanted to live. But only if she could live a life. I prayed that I was making the best decisions for her. Doing things the way she had wished. And not because I didn't want my Mom to die.

There were so many things we were supposed to have done. Places to visit. Things to experience. My Mom was supposed to be a Grandma at some point. There were so many more conversations we were supposed to have had. But in those moments, I couldn't think of any of it.

Around 5PM, my cousin came in. And in that moment, my Mom passed. We saw her take her last breath. After a few moments, we called the nurse. And she let the doctor know. Shortly, he came to exam my Mom. And to confirm what we knew...

It was a lot to bare. I left my Aunts, Uncles, and cousins with my Mom. And went back to that bench. I needed to call the Mortuary. All the big decisions. Who to use? What exactly did I need to do? I couldn't remember from 7 years prior. I finally made the call. Let the Charge Nurse know. I sent texts. Made phones calls. Barely kept it together. I don't even remember how I told my sister. I honestly don't. But I know I let her know.

At some point, my family came to tell me Goodbye. And I went to go back to my Mom. I spoke with the nurses. Who were going to clean my Mom's body and prepare her. They asked if I wanted her socks and jewelry. Was there anything they could do for me?

There are no words to express how difficult this was. How alone I felt. The staff was amazing. Dr. U kept his word. Stayed at the hospital. At the desk outside my Mom's room. I can still remember seeing him, when I left that night. My Mom's nurse stayed past Shift Change. They gave me time with my Mom. Alone. They packed up our belongings. All the snacks they'd brought us earlier in the day. Boxes and boxes of tissues. The Night Nurse came and sat with me. Let me cry. Assured me, they'd be there. If and when I needed anything. That night. In the future. Whenever I needed them. 

Eventually, the Mortuary came. Gave me some time with my Mom, after they had prepared her for transport. They gave me some meaningful gifts. And all the information I'd need in the coming days. And they were gone. They'd taken my Mom. And I was alone.

I sat in that empty room. Not sure which way was up. Not knowing how to put one foot in front of the other. Had I been stupid? Blind? In denial? Had my Mom been that sick? Did this all just happen this quick? I still don't have those answers. And probably never will. 

What I do know is, I'll never forget my Mom. I'll always think of her in this way. Full of life. Ready for adventure. And so excited to be in nature and surrounded by animals. We didn't have a perfect relationship. In fact, we didn't really get close until my Dad's passing. 7 years. Doesn't seem like it was long enough.

I feel like I could have done so much more. Made her life so much better. In so many ways, I feel like I failed my Mom. I tried so hard every single day. But it never felt like it was enough. Maybe we just never got past losing my Dad. But I feel like I could have done more. Been more. Provided a better life for her.

It's all hard. I don't know which way to turn first. I spent nearly all night on the phone. Once I got home Tuesday. Talking to an amazing family friend. And maybe got 2 hours of sleep. I took the dogs out on a long walk yesterday morning. And spoke with the Mortuary. But it was just a day of being alone. I needed it. Our dogs needed it. My soul needed it. 💜

My Momma Angel

Yesterday evening, my Mom gained her wings. She fought so incredibly hard to live. To beat her cancer. To continue living the life she wanted to live. My Mom was a fighter. Until the very end. 

My heart is shattered. I know I'll never be the same. But isn't that the price we pay for love? That one day we feel so completely broken. Because the people we love are no longer with us. But I'll always carry our memories in my heart. And my Mom's love. Nothing will ever change that.

 

And the only comfort I have...is knowing my parents have been reunited. I know my Mom missed my Dad so much over the last 7 years. I know that she is no longer in pain. Like my Dad is no longer in pain. It's the only real comfort I have. Knowing they are together. And resting. I love you Mom and Dad! 😇💙😇💚