Happy Halloween!

Today is one of those loaded days for me. Today marks 5 months since my Mom's passing. It's also 19 years since my Auntie passed away. She was like a second mom to me. And both my Mom and Auntie loved Halloween so much. So I know...it will be a tough one...

You see, my Mom made my Halloween costumes. My entire life. When I moved out of the house. I realized for the first time, that it was not normal for someone to do this. I have the best memories of going to the fabric store with my Mom. Picking out the pattern, of the costume that I wanted. Then the fabric. We'd go a month or two before Halloween. 

Then the night before Halloween, my Mom would stay up all night. Sewing this amazing creation. Her sewing room across the hall from my bedroom. I can still hear the hum of her sewing machine. The country music she'd be playing. The steam from the iron. My Mom would make the accessories and everything. I was always some complicated princess. Or something of the sort. That required yards and yards of beautiful fabric. And about 10 accessories. I'd wake up to a beautiful costume hanging in my bedroom. Like a fairy had put it there. In reality, I had a Mom that loved me that much.

A day or 2 before Halloween we'd also spend the day baking. Making sugar cookies from scratch. Cupcakes. Decorating them with homemade frosting. And so many sprinkles. My Dad would taste test them for us. And I'd pack up bags of candy. All of this for my School Parties. 

And on Halloween, we'd make homemade pizza. Every year. And on the odd year, when that wasn't possible. We'd still buy pizza. We'd make Mummy hotdogs. Pop popcorn. Go through our neighborhood Trick-Or-Treating. Honestly, a handful of houses was enough for me. And we'd go home to watch some Halloween movies and hand out candy. 

This last month, I've struggled more than any other time. As of yet. I've found a lot of comfort and relaxation in painting. I bought a bunch of signs at the Dollar Tree. And I sit and paint in the evenings. I've given them to family, friends, neighbors, and a few to the Medical Clinics my Mom once got treatment at.

In a lot of ways, they remind me of our Halloween decorations. My Mom loved to decorate for Halloween. I'm not sure what it was. But even a simple trip to the Grocery Store...would result in a nice little Halloween decor shop. 

Then there was my Auntie. She LOVED Halloween! She took care of me when I was little. And every year on September 1st, we'd begin decorating her home. Inside. Outside. On the roof. In the front yard. All over the house. It's probably why I've always loved this holiday.

About 2 or 3 weeks ago, my littlest neighbors caught me outside. And asked me where my Halloween decorations were. Um, in the attic. And I don't climb. But I remembered seeing a small box in my Mom's closet. So I dug it out. And decorated our front porch and gates. The kids were so excited!

This weekend, I put up some decorations inside the house. Those, I knew were in the closet. It started to feel a little more festive. And I even went to dinner with a friend on Friday. I got a little dressed up. Nothing too crazy. I painted my face and wore some leopard ears and a tail. But it was a nice change of pace. 

I spent yesterday, doing the things my Mom and I would have done today. I baked cookies and cupcakes. Which I shared with my neighbors, friends, and family. I made homemade pizza. And ate popcorn while watching some of our favorite Halloween movies...and the Munsters. 

Going forward, these are the things I want to carry with me. Traditions that I want to take into the future. To honor these two amazing ladies. As hard as days like this can be, they can also be full of amazing memories. 

Tonight I'm going to help a friend handout candy. And just enjoy being in the moment. That's what I'm learning. There will always be a place in my heart, where I will miss the people I've lost. But there is also something magical about being able to carry their memories into my future. Happy Halloween! 💜

 

Thank You!

It's not been the best week. Monday I had a big mix up with the pharmacy. I had a very emotional appointment at the OB/GYN. Why is the entire place covered in posters of babies? The hallways. The exam rooms. The checkout desks.

For someone like me...who's always wanted kids. It's hard. Just to go there. I was there for a shot and a checkup. To see if all the hormones are helping get my body back into a cycle. And I cried. Meltdown type of crying. I held it together in the waiting room. In fact, I gave one mom some breastfeeding tips. My years of working at WIC sometimes come in handy. 

But going into the exam room. It all just came out. And I cried so hard. The poor nurse. She was new to me. Because my midwife retired. And I'm now being floated between anyone who can see me. 

I'm also at a hormone peak. So I'm sure that doesn't help. Apparently my peak ovulation day was Tuesday. And my new midwife tells me, "Go home and get busy. You're not too old to be a momma." The tears silently soaked the inside of my mask. 

I almost wanted to ask...you got any single guys around here? Good ones. Not the creeps that keep sending me DMs on Instagram. Or the ones who scream cat calls at me when I'm running. Or the lazy ones who are looking for a Sugar Momma. But a good man. To not just make babies with. But to share my life with.

I kept my mouth shut. Let her do her exam. And ultrasound. Had my shot and left. The pharmacy messed up my Flu Shot appointment. And I had the world's toughest counseling session yet. I basically spent 2 hours in the fetal position crying. Childhood trauma is tough. Especially since I've never talked about these things before. To anyone. 

I was determined to make Tuesday better. Left my house early...but somehow still had to run 2 miles to Walgreens. Because I was somehow late to my appointment. Afterward I decided to take a stroll around our Old Town. And was devastated when the chain to my Mom's necklace broke. And I lost her cross. 

I spent hours retracing my steps. Crawling on my hands and knees. Going through the grass. Asking tourists if they'd seen it. Talking to shop keepers. Eventually sitting in the grass and crying. And I'm not even a crier. But this means so much to me. It was a symbol of her faith. How much she loved and trusted God. I still can't believe what happened...

Eventually I grabbed something to eat. Called my cousin and my Auntie. Because I needed to make sure they could help me next week. I'm having a colonoscopy and endoscope. And need to arrange my rides. Then...I talked to GI for a bit. 

Yesterday I walked back. Spent more hours searching. Praying. Talking to more strangers. Writing little MIA posters out. And taping them around. Surprisingly enough...many strangers helped me. I'm so very thankful. 

I even met a man who is a Metal Detector enthusiast. He was teaching me all about it. We searched for hours. With no luck. So I returned home after a trip to the grocery store.

Over 3 miles from the grocery store to my home.  Carrying pounds of fruit home. I was so tired. Emotionally spent. But I decided to work on one of my Mom's last requests. Thank You baskets for her Medical Team. 

I should have gotten better pictures. But I spent the entire night baking cookies. Then had an early Counseling session today. Another appointment. And a job interview. So I snapped this in the back of my Auntie's truck. Right before I started delivering them.

You know what? It made me feel so good! I showed up to Radiation first. I purposely went around lunchtime. Thinking...the offices will be much quieter. Less chance of running into someone I might know. Is that weird? I just didn't want to lose it...in a full office. Especially coming from a job interview. More on that later.

The receptionist was so grateful. My Mom never needed radiation. But I spent so much time there with my Dad. We did use other services in that office. Mostly the Dietitian. So I wrote a little card. And dropped off the basket. Happily accepted a hug. And went on my way.

I went next door. I mean I probably looked hilarious! Pencil skirt and stilettos. Carrying a gift bag bigger than myself. A smaller bag. 2 large buckets of snacks. And a gallon sized bag full of pills. This is my 3rd drop off of meds. How did we accumulate so many?

I didn't see anyone that I knew. Not the guy who usually greets us at the door. And checks our temperature. Not nurse Jackie. Or my Mom's MA Orly. I didn't run into her Oncologist. Or even see Melissa the clerk. 

I managed to get into an elevator. Prayed I wouldn't drop anything, fall down, or see anyone I know. Emotionally I wasn't sure I could handle it. I snuck by check in desks and made it to the checkout desks.

Only one person was working. I had never seen her before. So I had a seat. Covered in things. While the clerk helped setup appointments for a patient. And I kept thinking to myself...I'd like to work here one day. To be helpful to people. To be in this environment...were you make such a difference.

I was also silently praying...that my Mom's MA or Oncologist wouldn't wonder through the door. Maybe coming back from lunch. Or between patients. Because I knew I would burst into tears. And I wasn't sure that was the best for any of us.

After 30 minutes. Nearly having a heart attack because another oncologist, Dr. R walked 2 of his patients out during that time. And looking up how long the average oncologist goes to school for...Angela came to chat with me. 

She Thanked me a million times. Hugged me. Asked about my parents. Which got the tears rolling. Who am I? I've never cried this much in my entire life! But she listened to my story. And I just kept thinking...oh God help me get through this. Help me not completely lose it here.

Eventually I asked her about some other items I was needing to dispose of. A box of sharps. Liquid meds. A few narcotics. She disappeared into the back again. My anxiety started to get out of control. All of this is so new to me. But I tried to stay calm.

Eventually she came back with some answers. And a nurse. And more hugs. I was so happy to make a positive impact on them. Give them a little bit...of what this office gave my parents and I for 9 years.

I'm only sad about one thing. I came home this evening. Tried a cookie that I baked. And was not happy with them. At midnight they were soft and gooey. The chocolate chip cookies were so chewy. At 5PM...they'd gone a bit crunchy. Maybe I'll bake for the office again at Christmas time. 

I left there feeling lighter. One I'd accomplished something off my Mom's list. Half the Thank You baskets. In 2015...we cooked a feast for the office. In 2022...I baked 10 dozen cookies. And put together baskets that weighed a ton! I mean they still appreciated it. But I felt like I could have done better. 

I also dropped off a very important gift. My Mom had been making Dr. N. As much anxiety as I was feeling waiting in the office. I sort of wanted to see him open it up. Wanted to see his expression. Just because I know my Mom worked so hard on it. But I didn't see him. Or Orly. Maybe this is just where our stories end.

I left there and headed to Nephrology. Again...silently prayed that I wouldn't run into Christine. I'd love to see her. But wasn't sure having a complete meltdown in the waiting room was the best. The receptionist and MA were so grateful. Hugged me. And gave me their condolences as well. 

When I was walking out the door, I could hear them telling Dr. E about my Mom. And I nearly sprinted in my stilettos across the parking lot. And cried in the truck. I saw him walk out the door. And have never been so grateful for a work truck in my life! Who was blocking me from his view.

I got a lot of closure today. And peace. I had a good interview. I was offered a nice job. But it includes a lot of commuting out of town. Which I'm just not sure of right now. But it was a HUGE boost to my confidence.

But back to those baskets. It wasn't a ton. A few drinks. Some fruit. Candy. Those homemade cookies. And a bunch of snacks. I wish I could have done more. Sent them something amazing. But right now...it's what I can afford. I still need to make my way to Cardiology. And the hospital. I'd like to take 2 sets of baskets to Oncology and the ICU. Day and Night Shift.

I can't begin to express how grateful I am to all of these people. They made our journeys so much easier. All the doctors, nurses, MAs, NPs, receptionists, clerks, FA advisors. All of them. The cleaning crews. Everyone was so wonderful. 

After today...I'm really considering going all out at Christmas time. I love to bake! But have no one to bake or cook for anymore. And this is just a small way to show my appreciation. Because I swear to you...the people who work in Oncology are angels on Earth. 💜

My Momma Angel

Yesterday evening, my Mom gained her wings. She fought so incredibly hard to live. To beat her cancer. To continue living the life she wanted to live. My Mom was a fighter. Until the very end. 

My heart is shattered. I know I'll never be the same. But isn't that the price we pay for love? That one day we feel so completely broken. Because the people we love are no longer with us. But I'll always carry our memories in my heart. And my Mom's love. Nothing will ever change that.

 

And the only comfort I have...is knowing my parents have been reunited. I know my Mom missed my Dad so much over the last 7 years. I know that she is no longer in pain. Like my Dad is no longer in pain. It's the only real comfort I have. Knowing they are together. And resting. I love you Mom and Dad! 😇💙😇💚 

Always Grateful

We're very grateful today. My Mom gets to go home. She is super excited. Am I 100% convinced that she is ready? No. But I'm her daughter and her caregiver. So I tend to worry too much as well. 

I will never stop believing in miracles. Or in prayer. I'm super grateful that my Mom is doing so much better. I'm grateful for all the amazing nurses, techs, therapists, everyone in the food department, and all of the people who helped with testing. Also the housekeeper. She was so sweet. We also got the best visit from the Support Dogs today. It made my Mom so happy and excited!

Most of all, I'm grateful for her doctors. Her oncologist, whom we trust so very much. He always treats my Mom with such care and respect. To Dr. Iggy...he's been my Mom's doctor before. He is just so straight forward. And I appreciate that. We cannot forget our nephrology team. Who have been so supportive during such rocky times. 

I'm grateful. I believe that God is watching over us. He's listening to our prayers. And sending all of these amazing men and women...to take care of my Mom. I'm grateful. You just don't understand how much. My heart is so full...because my Mom gets to go home. The smile on her face...is worth a million words. Now we just pray for good test results. 💜

She Is Brave

 I keep telling my Mom just how brave she is. I don't think she realizes it. I think she doubts herself. My Dad's journey keeps creeping in. When you don't want it to. She thinks of everything he went through. And she gets scared. I get it. 

But with all her injuries. All the set backs. All the pain. My Mom is pushing forward. Yesterday was the first time, I saw her super anxious and not in full control. It was tough. And I was struggling with that. 

Because anyone that knows my Mom, knows how strong she is. She is fierce! The kind of lady that you don't want to fight with. I don't remember her falling apart when my Dad was sick. We all had that initial shock. Cried. And then picked up the pieces to help him on his journey.

Yesterday we couldn't calm my Mom down after her MRI. She's had them before. But something was different yesterday. And today, she needed a Lumbar Puncture. It's not anxiety before the procedure. So much as it's post-scan/test. And the anxiety isn't even about waiting on results. It's about the procedure. 

Today they needed to see if she could lay on her stomach or right side. And we were struggling. The techs downstairs kept calling. My Mom was in so much pain. But she was trying. Eventually the doctor made the decision to just send her downstairs. Let that team, take a go at it. So we'd stop tiring her out.

They ordered transport. And we prayed. It also happened that a priest had come by earlier. To pray, bring us communion, and to anoint her. So we prayed some more. I asked various people to pray. And right now, they are downstairs.

But my Mom is so brave. She needs this test to confirm the type of cancer that is present. And so they know how to move forward. I know my Mom was scared. I saw the shaking hands. The silent tears that escaped her eyes. And I heard it in her voice. But when her tech walked in the room, she told her, "Let's do this."

My strong Mom is out there being strong. She's so brave. And she's a fighter. Boy is she a fighter! Please keep her in your prayers. I don't normally document these things on here. But I want you to know, my Mom is brave. And we're going to fight this fight together. 

As a caregiver, I might cry. Like today. In the stairwell. Because my Mom was in so much pain. And trying to be brave. Not asking for meds. I might cry, when the doctor says something. And I'm so grateful we have to wear these masks. That absorb all my silent tears. That I hope I'm hiding...but they're probably falling anyway. 

I've been trying to practice some self care. Even here at the hospital. Sunrise walks around the hospital. Visiting the little bunnies in the garden...2 or 3 times a day. Running up and down 6 flights of stairs...4 times. At least twice a day. Little things. Taking a few minutes to shower. Also allowing myself to feel things as they're happening. Even if I cry in the stairwell. I'm not ashamed. I know this is hard. I know we have a long road. And I know I'm only human. I just hope...I'm half as brave as my Mom. 💜

Sometimes We Crack

To be honest, I thought I was going to meltdown today. The Hospitalist came in. Had a very serious look on his face. And told me to sit down. He had some serious things to talk about. I literally thought I was going to throw up. 

It's hard going through another Cancer Journey. Having the history with my Dad can be good and bad. It prepares us for what's next. But then...we sort of know what's coming next. It's like having Cancer PTSD. Is that a thing? 

So there is this spot on the base of my Mom's head. Where your head sits on your spine. She's going to need a Lumbar Puncture. My Mom is so anxious about everything. And doesn't want to talk about anything. It makes me nervous. And she doesn't seem 100% after yesterday. So I pray everything is going to be OK.

There is still no concrete reason for such a high white blood count. The oncologist and the doctor that performed the bone marrow biopsy both told us her cancer is accelerating. But not active enough to be concerned. But Dr. Iggy gets me all nervous.

Tells me it's the cancer. And there is probably a lymphoma along with her 2 leukemias. Her brain bleed looks to be improving. As do her kidneys. But there is just so much. And then I look across the courtyard...and remember it hasn't yet been 2 years...since she almost died. Here. In the ICU.

I know how precious life is. I've watched my Dad as he crossed over. I've watched my Mom fight...for nearly 5 years now. I know...anything can happen. But it's a lot to bare. All by myself. Especially when my Mom's anxiety was so high. The MRI here...just totally struck something in her. And last night was so rough. Her anxiety after Dr. Iggy's visit got worse. And the anticipation of another test...has her near the edge.

Her oncologist came to visit her. He calmly explains the lumbar puncture to her. Tries to reassure her. He gets down to her level. To really talk to her. Look her in the eyes. It's so reassuring to her. It calms me down. Because I know he really does care.

After he left, my Mom was doing a bit better. But still super anxious. Then the nurse and I tried to get her to lay on her side. Trying to get her to her stomach. The nerves got worse. Her pain got worse. Dr. Iggy said she had to have this test. Emotions were high.

I told the nurse I was going to the bathroom. In reality, I sat in the stairwell and cried. And that's OK. Sometimes you have to let the feelings out. You need to just feel what is going on. I like to do it away from my Mom. So she doesn't see when I'm struggling. I want her to lean on me.

It's just been an emotional day. Soon we'll try again. And see if she can get on her belly. For the 30 minutes they'll need her to. She is so strong. I know she can do it. And because I know she can do it...I know I can remain strong for her. Because honestly, she doesn't really have anyone else to lean on. So I have to be strong. 💜

Grateful

I can't think of any other word. Grateful just seems appropriate. We had the BEST tech yesterday. She went over and beyond. Changed all the bedding. Helped me shower my Mom. Got me linens. So I could shower. Even made sure no one came to our room...so I didn't have to rush in the shower. Made sure I had everything I needed to nap. 

Renee checked on us all day. Emptied the hat...because they've been monitoring my Mom's output. She brought fresh ice water every couple of hours. Took the food trays promptly. Emptied the trash. And when my Mom started to be really nauseous...she tried everything to help her and calm her.

Last night we got another really good tech. And an outstanding nurse. I stay at the hospital at night...to help as much as possible. Because I personally know both sides. And if I can help take my Mom to the restroom, make her comfortable, or help her eat...why not? It frees everyone else up...for the patients that need more care.

But our nurse last night...was on it! She didn't let the IV pump beep more than twice before she was in the room. She stayed ahead of my Mom's pain. Was so super quiet and attentive. After 1AM....she was the one taking my Mom to the bathroom. So I could rest.

This morning we found out...they were short staff last night. But you would have never known. She was so good at her job. And going over and above. My heart was so grateful. She didn't make my Mom feel bad...because she needed pain meds. Or wanted jello at 3AM. Or when she asked for new socks. Jessica was so happy to help.

Today we have 2 other amazing people. Shawn was a tech 7 years ago when my Dad was in the hospital. He is so good! I learned so many tricks from him. On how to take care of my Dad. Things that made it easier for both my Dad and I. He's a great guy. And our nurse Megan...she seems amazing! Came in with the best attitude. 

I'm so grateful when you get people like this on your team. Honestly all day yesterday, we felt like they were trying to throw us out. The Hospitalist wanted to know why the nephrologist wouldn't OK the MRI. Because it's the only thing keeping us here. And apparently, they need the bed. It seemed as though there was a bit of a difference of opinion going on. But Christine doesn't back down to anyone. She has been a great addition to our team. Whenever I'm feeling uncertain about something...I ALWAYS ask Christine. I really value her opinion. 

Today I am just grateful for these amazing people. Along with my Mom's oncologist, her physical therapists, and the cardiac team. They take the edge off of things. Like I don't have to second guess what's going on. We've had them on our team for so long. We've been through so much. It just feels right. I can breathe and let them do their jobs. I can take a few days, to just be. To be attentive to my Mom's needs. And not be worrying about her care. I'm so grateful for these people, that God has put on our path. 💜

It's a New Day, It's a New Dawn

 Today we woke up very differently than normal. Maybe our new normal? Either way it seems so unreal.

My Mom's cancer has made a fast progression. And all at once she's had another medical emergency. It quite honestly worries me to the core. I didn't want to leave her last night. But with corona virus, being at a hospital so far from home, and having dogs...I headed home late last night. Got the dogs fed. And prepared for a day or 2 without us. Watered the garden at midnight. And prepared some supplies for us.

I should have been back sooner this morning. But exhaustion kicked my butt. The dogs didn't want me to leave. I almost didn't make the trash today. I woke up to hear the truck driving by. But our trashman is super nice. And came back for ours. I even got the recycables set out for tomorrow.

We still got plenty of visits. From plenty of doctors. Tomorrow My Mom's oncologist will be here first thing tomorrow morning. To discuss chemo. Chemo! The thought gives me so many feelings. It's been nearly 5 years since my Mom's diagnosis. But I didn't think chemo was this close. Because the leukemia had been stable. Stable!

My Mom spoke with the director of oncology this morning. And the dietitian. I spoke with her hospitalist, nephrologist, the oncologist, another hospitalist, and the team who will be doing another bone marrow biopsy. So much is happening! We even had a visit from a Eucharistic Minister who prayed over my Mom. And gave us eucharist. 

First thing in the morning, my Mom will have a bone marrow biopsy. And if her kidneys are doing better, which they've greatly improved already, she'll have another MRI with contrast. If not, she'll have a CAT scan. Potentially there will also be a bone density scan. 

It's so hard being that the weekend is near. So do they start chemo in the hospital? Do they send us home? What tests can they do in the hospital? Lots of things. We do know, she won't be discharged before Sunday. Honestly, I feel like we'll be here until early next week.

Great things are already happening. Like my Mom's blood chemistry is improving. Her kidneys are working great. Just needed some help with meds. Now we just try and get her to eat. That's the big thing. Eat Momma, Eat!

It feels almost like my Dad's journey. Because it goes from nothing...to full force. And you're left with your head spinning. But we're making a plan. And have some amazing doctors on our team, #TeamIrene Most importantly I have full confidence in our doctors. 💜

Again...

 You guys...we're back. In the ER. I know. I went to make some dinner. So I could watch #TeenMom. My one show a week. And I heard this little noise. It was my Mom. She barely made any sound. But she fell on her way from the bathroom to sitting on the couch. 

I'm so sad for her. She was immediately in pain. I was able to get her up, the dogs situated, and to the ER...before an ambulance would have made it to our home. But you guys, she fell on her right side. The side were she already has a broken arm. I have a feeling she broke something else. But thankful it wasn't her leg or something like that. 

I have to say, things are moving quickly. We didn't spend much time in the Waiting Room. My Mom was almost immediately taken to X-rays. She's had a CAT scan. And now, we're in a room in the ER. What a night! 💜